Hello My Name Is...

Hello my name is Ashley Jene and I thought I better reintroduce myself to all of you! I am sorry that my blogging has tappered off, it has been a while. Life just gets crazy with so many people under one roof! Please remember us this coming week as we will be heading to Sioux Falls for Ethan's doctor appointments. We do pray that they will be able to find something as it is beginning to look like he is suffering from brain damage. This can be caused by Encephalopathy, which he had been diagnosed with last year. Although, he was deemed to have Static Encephalopathy. "Static" meaing non progressive, and "Encephalopathy" meaning Disease of the Brain. After doing much research of my own, and his social worker doing the same, I am lead to believe that he has Glycine Encephalopathy, which pretty much fits him to a "T". You can view a discription of Glycine Encephalopathy HERE.

Much prayer is needed, we have seen this doctor before and she has stated then that she could tell something wasn't right on with him, but at that age it was too early to be able to tell or even begin testing. We will keep you posted!